Category Archives: Students Doing Research

Canadian Skin Patient Alliance

The mission of the Canadian Skin Patient Alliance is to promote skin health and improve the quality of life of Canadians living with skin conditions (affecting skin, hair and nails), diseases and traumas.  The alliance advocates for best treatment options … Continue reading

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Department of Human Resources, Labour, and Employment: Province of Newfoundland

Provides a variety of programs for persons with disabilities. These programs are divided into categories such as: education, employment, health, housing, financial support, adaptive sports, scholarships and grants, and transportation. This organization also provides statistics and reports regarding persons with … Continue reading

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The Vision of Children Foundation

Advocates and supports research toward correcting conditions that cause vision loss. Contact Info:  12555 High Bluff Drive, Suite 330 San Diego, CA 92130 Phone: 858-314-7917 Email: info@visionofchildren.org Website: http://www.visionofchildren.org

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The Vision for Tomorrow Foundation

Provides funding for research initiatives and offers support and information for those seeking to learn more about albinism and aniridia. Contact Info: 655 Deerfield Road Suite 100-#130 Deerfield, IL 60015-3241 Studio B Email: info@visionfortomorrow.org Website: http://www.visionfortomorrow.org

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Positive Exposure

Conducts workshops and exhibitions for service providers, schools, and the general public to challenge the stigma associated with physical difference using a very powerful tool to fight discrimination: evocative photographs representing persons of various ages and cultures with albinism. Contact Info: 43 East 20th Street, 6th Floor … Continue reading

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HPS Network, Inc.

Provides support and information for people and families dealing with Hermansky-Pudlak Syndrome and related disorders such as Chediak-Higashi Syndrome. Contact Info: One South Road Oyster Bay, NY 11771-1905 Phone: 800-789-9HPS Fax: 516-624-0640 Website: http://www.hpsnetwork.org Email: info@hpsnetwork.org

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American Nystagmus Network (ANN)

Provides information and support regarding nystagmus, an eye condition commonly associated with albinism. Contact Information: 303-D Beltline Place, #321 Decatur, AL 35603 Website: http://www.nystagmus.org

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American Foundation for the Blind

A national nonprofit that expands possibilities for people with vision loss, such as broader access to technology; elevated quality of information and tools for the professionals who serve people with vision loss; and promoting independent and healthy living for people with vision loss by providing relevant and timely … Continue reading

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The National Organization for Albinism and Hypopigmentation (NOAH)

A support and advocacy group for people with albinism and for parents whose children have albinism Contact Information: P.O. Box 959 East Hampstead, NH 03826-0959 Phone: (800)-473-2310 Website: http://www.albinism.org Email: info@albinism.org  

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