Tag Archives: General Information and Support

CDC Guide to Increasing Physical Activity Among Adults with Disabilities

Provides information and resources for doctors regarding physical activity guidelines and suggestions for people with disabilities. Contact Info: Website: http://www.cdc.gov/ncbddd/disabilityandhealth/pa.html

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The Vision of Children Foundation

Advocates and supports research toward correcting conditions that cause vision loss. Contact Info:  12555 High Bluff Drive, Suite 330 San Diego, CA 92130 Phone: 858-314-7917 Email: info@visionofchildren.org Website: http://www.visionofchildren.org

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The Vision for Tomorrow Foundation

Provides funding for research initiatives and offers support and information for those seeking to learn more about albinism and aniridia. Contact Info: 655 Deerfield Road Suite 100-#130 Deerfield, IL 60015-3241 Studio B Email: info@visionfortomorrow.org Website: http://www.visionfortomorrow.org

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National Federation of the Blind

Works to improve blind people’s lives through advocacy, education, research, technology and programs encouraging independence and self-confidence. Contact Info: 200 East Wells Street (at Jenigan Place) Baltimore, MD 21230 Phone: 410-659-9314 Fax: 410-685-5653 Website: http://www.nfb.org Email: nfb@nfb.org

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Lighthouse International

Provides vision and rehabilitation services to the visually impaired, offers clinical services, education, research and advocacy for people with low vision and blindness. Contact Info: 15 West 65th Street New York, NY 10023 Phone: 800-284-4422 Website: http://www.lighthouseguild.org Email: info@lighthouseguild.org

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HPS Network, Inc.

Provides support and information for people and families dealing with Hermansky-Pudlak Syndrome and related disorders such as Chediak-Higashi Syndrome. Contact Info: One South Road Oyster Bay, NY 11771-1905 Phone: 800-789-9HPS Fax: 516-624-0640 Website: http://www.hpsnetwork.org Email: info@hpsnetwork.org

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American Nystagmus Network (ANN)

Provides information and support regarding nystagmus, an eye condition commonly associated with albinism. Contact Information: 303-D Beltline Place, #321 Decatur, AL 35603 Website: http://www.nystagmus.org

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American Foundation for the Blind

A national nonprofit that expands possibilities for people with vision loss, such as broader access to technology; elevated quality of information and tools for the professionals who serve people with vision loss; and promoting independent and healthy living for people with vision loss by providing relevant and timely … Continue reading

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The National Organization for Albinism and Hypopigmentation (NOAH)

A support and advocacy group for people with albinism and for parents whose children have albinism Contact Information: P.O. Box 959 East Hampstead, NH 03826-0959 Phone: (800)-473-2310 Website: http://www.albinism.org Email: info@albinism.org  

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